UPDATE AUGUST 2026: Sadly, Coen passed away early August. We send our heartfelt condolences to Amanda, James, Logan and his loved ones. Coen’s strength and love of life left a lasting impression on all who followed his journey. We hope his story continues to inspire support for the fight against brain cancer and the advancement of life-changing research for children and their families.
For most seven-year-olds, life is filled with school, sport, video games and endless adventures. For Coen, it was all of those things too — but alongside them, he faced challenges that most people couldn’t imagine.
A passionate Cronulla Sharks supporter, Pokémon collector, Mario Kart enthusiast and car karaoke champion, Coen was a bright, resilient little boy who loves life. Yet behind his infectious smile is a journey that has seen him spend almost his entire life fighting brain cancer.
At just 15 months old, during the uncertainty of the 2020 lockdowns, Coen’s family received the devastating news that no parent should ever have to hear. He was diagnosed with Posterior Fossa Ependymoma, with cancer cells in his cerebrospinal fluid causing multiple tumours within his brain.
What followed was years of treatment, hospital stays and incredible courage. Coen underwent four brain surgeries to remove multiple tumours, three rounds of radiation, two clinical trials and oral chemotherapy in the hope of buying more precious time.
Despite everything he has endured, Coen along with his loving Mum, Amanda, Dad, James, and little brother Logan, continued to face each day with remarkable strength, and gratitude for the time they had together.
